Comments on: Things That Pain Me http://thecurvature.com/2009/04/06/things-that-pain-me/ Wed, 17 Mar 2010 19:28:56 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Casdok http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11975 Casdok Sat, 25 Apr 2009 20:11:14 +0000 http://thecurvature.com/?p=4581#comment-11975 It pains me to. Good post. It pains me to. Good post.

]]> By: Anna http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11602 Anna Fri, 10 Apr 2009 13:06:35 +0000 http://thecurvature.com/?p=4581#comment-11602 I'm assuming that HFA = High Functioning Autism? I’m assuming that HFA = High Functioning Autism?

]]> By: Ryan http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11597 Ryan Fri, 10 Apr 2009 06:17:39 +0000 http://thecurvature.com/?p=4581#comment-11597 <i>Isn’t Ryan’s comment a curebie bingo square? “You people who have language facility don’t have REAL autism, so shut up.”</i> I'm not suggesting that anybody shut up. What I'm suggesting is that AS and HFA are practically, functionally, and perhaps medically very different from autism. So basically I think people with other ASDs should speak for themselves and not everybody with an ASD. Isn’t Ryan’s comment a curebie bingo square? “You people who have language facility don’t have REAL autism, so shut up.”

I’m not suggesting that anybody shut up. What I’m suggesting is that AS and HFA are practically, functionally, and perhaps medically very different from autism. So basically I think people with other ASDs should speak for themselves and not everybody with an ASD.

]]> By: Meowser http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11596 Meowser Fri, 10 Apr 2009 05:29:34 +0000 http://thecurvature.com/?p=4581#comment-11596 Isn't Ryan's comment a curebie bingo square? "You people who have language facility don't have REAL autism, so shut up." Ryan, all I'm gonna say is this: look at the DSM-TR-IV diagnosis definitions for "autistic disorder" and "Asperger's disorder," and tell me there isn't a whole buttload of overlap. And then consider the fact that almost everyone with any form of ASD attains some kind of communication ability by adulthood. "Not speaking" is only ONE possible presentation for autism (read that diagnostic criteria again), and is often a temporary phase anyway. And "functionality" covers a very, very broad range of communication, activity and self-care skills. It's never true that "anyone who can't do X can never or almost never do Y either," or "anyone who CAN do X can always or almost always also do Y," any more than it is for neurotypical people. And not everyone who's anti-curebie-ism is AS/HFA as clinically defined, believe me. Not even close. Isn’t Ryan’s comment a curebie bingo square? “You people who have language facility don’t have REAL autism, so shut up.”

Ryan, all I’m gonna say is this: look at the DSM-TR-IV diagnosis definitions for “autistic disorder” and “Asperger’s disorder,” and tell me there isn’t a whole buttload of overlap. And then consider the fact that almost everyone with any form of ASD attains some kind of communication ability by adulthood. “Not speaking” is only ONE possible presentation for autism (read that diagnostic criteria again), and is often a temporary phase anyway.

And “functionality” covers a very, very broad range of communication, activity and self-care skills. It’s never true that “anyone who can’t do X can never or almost never do Y either,” or “anyone who CAN do X can always or almost always also do Y,” any more than it is for neurotypical people.

And not everyone who’s anti-curebie-ism is AS/HFA as clinically defined, believe me. Not even close.

]]> By: Ryan http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11541 Ryan Thu, 09 Apr 2009 08:50:15 +0000 http://thecurvature.com/?p=4581#comment-11541 You know, a lot of this stuff where people with AS or HFA feel entitled or obligated to speek for people with autism really bothers me because there are light years of difference in functionality on the autistic spectrum. Nobody (read: experts) really knows if autism shares causal mechanisms with other autism spectrum disorders. People are diagnosed based purely on behavioral symptoms and what is clear is that people with diagnosis of high functioning autism or AS are incredibly less impaired than those with an autism diagnosis. You know, a lot of this stuff where people with AS or HFA feel entitled or obligated to speek for people with autism really bothers me because there are light years of difference in functionality on the autistic spectrum.

Nobody (read: experts) really knows if autism shares causal mechanisms with other autism spectrum disorders. People are diagnosed based purely on behavioral symptoms and what is clear is that people with diagnosis of high functioning autism or AS are incredibly less impaired than those with an autism diagnosis.

]]> By: Meowser http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11509 Meowser Wed, 08 Apr 2009 06:04:52 +0000 http://thecurvature.com/?p=4581#comment-11509 Oh gods, do NOT get me started. The VH1 ad? I'll bet right now those guys all know and have worked with aspie musicians. Maybe some of them even ARE aspie musicians, who knows. AS claims they "don't mean us" (aspies) when they talk about body-snatching, er, I mean curing autistic brains, but the fact is, they use Asperger's and PDD-NOS to pad their numbers, so I don't buy for a minute that they don't mean us. Not that it would be okay if they didn't. Possibly Yoko doesn't have any awareness of neurodiversity yet, and doesn't have any idea what the curebies are really up to and why they are GETTING IN THE DAMN WAY of people with autism, not helping them. (Never trust an organization with "autism" in the title that consists almost entirely of neurotypical people!) It sounds like it would be right up her alley, though, if she did know about it. Oh gods, do NOT get me started. The VH1 ad? I’ll bet right now those guys all know and have worked with aspie musicians. Maybe some of them even ARE aspie musicians, who knows. AS claims they “don’t mean us” (aspies) when they talk about body-snatching, er, I mean curing autistic brains, but the fact is, they use Asperger’s and PDD-NOS to pad their numbers, so I don’t buy for a minute that they don’t mean us. Not that it would be okay if they didn’t.

Possibly Yoko doesn’t have any awareness of neurodiversity yet, and doesn’t have any idea what the curebies are really up to and why they are GETTING IN THE DAMN WAY of people with autism, not helping them. (Never trust an organization with “autism” in the title that consists almost entirely of neurotypical people!) It sounds like it would be right up her alley, though, if she did know about it.

]]> By: Phil Schwarz http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11507 Phil Schwarz Wed, 08 Apr 2009 04:31:44 +0000 http://thecurvature.com/?p=4581#comment-11507 A propos your analogy to a fictitious "Womanhood Speaks" -- I explain the state of autism politics to friends in the LGBT community similarly, like this: Imagine it's before 1973 (the year that homosexuality was removed from the DSM)... and that the organization dealing with homosexuality with the biggest mindshare, political clout, and financial resources is NARTH (an organization (a real one, alas) that aims to "cure" people of homosexuality). A propos your analogy to a fictitious “Womanhood Speaks” — I explain the state of autism politics to friends in the LGBT community similarly, like this:

Imagine it’s before 1973 (the year that homosexuality was removed from the DSM)… and that the organization dealing with homosexuality with the biggest mindshare, political clout, and financial resources is NARTH (an organization (a real one, alas) that aims to “cure” people of homosexuality).

]]> By: abfh http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11505 abfh Wed, 08 Apr 2009 03:13:08 +0000 http://thecurvature.com/?p=4581#comment-11505 Autism Speaks actually has used the word "eradicate" in referring to autistic people. I'm posting only a partial link because I never give active links to hate speech: parade.com/articles/editions/2008/edition_01-27-2008/Autism_Changes_Everything Autism Speaks actually has used the word “eradicate” in referring to autistic people. I’m posting only a partial link because I never give active links to hate speech:

parade.com/articles/editions/2008/edition_01-27-2008/Autism_Changes_Everything

]]> By: Maddy http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11501 Maddy Wed, 08 Apr 2009 01:12:47 +0000 http://thecurvature.com/?p=4581#comment-11501 Newbie visiting via 'normal is over-rated.' It is a shame that Yoko is connected but sadly she seems to have been hoodwinked like so many others. BEst wishes Newbie visiting via ‘normal is over-rated.’ It is a shame that Yoko is connected but sadly she seems to have been hoodwinked like so many others.
BEst wishes

]]> By: Femmostroppo Reader - April 8, 2009 — Hoyden About Town http://thecurvature.com/2009/04/06/things-that-pain-me/#comment-11499 Femmostroppo Reader - April 8, 2009 — Hoyden About Town Tue, 07 Apr 2009 22:10:34 +0000 http://thecurvature.com/?p=4581#comment-11499 [...] Things That Pain Me [...] [...] Things That Pain Me [...]

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